Ani’s been doing some digital art on my iPad. She’s just learning how so she’s been using pictures as reference for what she wants to draw. Because of this, sometimes some strange pictures show up in my photos on my phone (since it shares an account with my iPad).
The other day I was going through my photos and was highly amused by this picture of a gnome right before this picture of Cameron giving a private lesson at taekwondo. The similarities between Cameron and the gnome made me laugh so much.
This week on Invisible Recovery Ani talks about mental health. It’s a long one, but worth watching all the way to the end if you or a loved one deal with mental health issues (related to chronic illness or not). She missed last week because she was procrastinating on editing this video since it was such a big job.
A couple months ago Fritz took the National Mythology Exam. Since he is in 5th grade he was required to take the basic 30 question exam plus the 10 questions on the theme (Hercules this year). It was his first time taking the exam.
He earned a silver medal! He only got one single question wrong out of the whole thing. He has really fallen in love with mythology this year so it’s no wonder he did so well. Pretty awesome.
Yesterday Ani started at least a month of physical therapy 2-3 days a week. Her therapist is experienced with people with Ehlers-Danlos (really important to prevent further injury). Her neck issues appear to all be totally related to the EDS.
When she moves her neck, her vertebrae don’t work together, but instead twist in opposite directions. This equals pain. Her front neck muscles are much weaker than her back neck muscles. This equals pain. She has craniocervical instability. This equals pain. So much pain. Doctors laughed at her for saying her neck felt too weak to hold up her head. Well, the physical therapist isn’t laughing. Ani was right about that all along!
The goal of the physical therapy and (so many) exercises she has to do in between visits is to strengthen her neck and retrain the muscles to keep her vertebrae in alignment and moving properly together. The ultimate goal is to get her back on the mat training at taekwondo. For now, though, after her first two visits, her neck is really hurting. We are hopeful that in a few weeks it’ll be much better (me more than Ani to be honest – she’s pretty much resigned to being in horrible pain for the rest of her life).
This week’s Invisible Recovery is a short one. A few weeks ago Ani decided to start walking to help build her strength back up. Today she takes you with her on her first walk.
This week on Invisible Recovery, Ani talks about good days and bad days. She’s having more good days now than she was before, but she’s still having way too many bad days.